Research Opportunity for People Affected by FSGS

We’ve been asked to share a time-sensitive research opportunity for people affected by focal segmental glomerulosclerosis (FSGS).

Pillar Patient Advocates is partnering with a research firm to speak with about 20 adults who either:

• Have been diagnosed with FSGS, or

• Are caregivers of someone with FSGS

Participants who qualify will take part in a 60-minute phone or web interview to share their experiences. Those who complete the interview will receive $125 in appreciation for their time.

If you’re interested, you can complete a short registration form here:

This study is for U.S. residents only and is accepting participants through November 21, 2025.

Your voice can help researchers and advocates better understand what life with FSGS is really like—for both patients and caregivers.

ReMend is not involved in conducting this research and does not receive any compensation if someone chooses to participate. We are sharing this opportunity as an informational resource for our community. Participation is completely voluntary. Please talk with your healthcare team if you have questions about whether participating in a research study is right for you.