Resources
Helpful resources can be found below.
Our mission is to serve as a nexus to bring the community (organizations) together to help people efficiently access appropriate services, and provide vital data and trend information for proactive community planning.
Dial: 2-1-1
(858)300-1211
(800)227-0997
The 988 Suicide & Crisis Lifeline (formerly known as the National Suicide Prevention Lifeline) provides free and confidential emotional support to people in suicidal crisis or emotional distress 24 hours a day, 7 days a week, across the United States. The Lifeline is comprised of a national network of over 200 local crisis centers, combining custom local care and resources with national standards and best practices.
You can always talk to someone by calling the Lifeline at 988.
AMERICAN ASSOCIATION OF KIDNEY PATIENTS
As the oldest and largest independent kidney patient organization in the U.S. – AAKP is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement, and the fostering of patient communities. AAKP fights for early disease detection and the appropriate diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation, including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options.
813-636-8100 Phone
800-749-AAKP Toll-Free
info@aakp.org
AARP is the nation's largest nonprofit, nonpartisan organization dedicated to empowering Americans 50 and older to choose how they live as they age. Advocating for people age 50-plus is at the heart of our mission. On health security, AARP fights to protect Medicare, expand access to health care, lower prescription drug prices, support caregivers and protect nursing home residents. On financial stability, we fight to protect Social Security, establish savings plans for workers and stop scams and fraud. We also work to combat age discrimination in the workplace and speak up for the vulnerable and underrepresented on issues like affordable housing and food security.
Our toll-free nationwide number 1-888-OUR-AARP (1-888-687-2277).
For Spanish-language speakers, call us toll-free at 1-877-342-2277.
Our team is available by phone Monday through Friday, 8 a.m. - 8 p.m. ET.
Aging & Independence Services is part of the County of San Diego Health and Human Services Agency. Our agency is the region’s federally-designated Area Agency on Aging, and we also provide many state and local programs. We offer assistance, information, and referrals to older adults, those with disabilities, and their family members. Our services and programs help people stay safe, healthy, and as independent as possible.
CALL CENTER: 800-339-4661
Our mission is to fight kidney disease and help people live healthier lives. We achieve our mission by providing financial support to patients in need and by delivering programs that educate, build awareness, and drive advocacy, resulting in greater public understanding and, ultimately, the prevention of kidney disease.
The American Kidney Fund provides resources and support services for individuals with kidney disease, including a Helpline that offers emotional support and assistance.
Kidney health questions/HelpLine
866-300-2900
helpline@kidneyfund.org
BALBOA UNITED CovER Department
The Balboa United CovER Department are health insurance and resource experts that can help you with a multitude of needs. Our mission is to help you understand your benefits, options, rights, and responsibilities so you never find yourself without proper and affordable access to medical care.
The Balboa United CovER Department is not a group of agents or brokers and is a free service available to all Balboa Nephrology patients and works in tandem with Balboa Staff and Physicians. We work hard so you can remain focused on what is truly important, your health and well-being.
858.810.7103 (English & Spanish)
CAREGIVER ACTION NETWORK HELP DESK
Caregiver Help Desk offers free support to family caregivers across the country. It is staffed by caregiving experts who can help you find the information you need to navigate your caregiving challenges and support you on your caregiving journey. With Caregiver Help Desk you can:
Have confidential conversations with caregiving experts about your caregiving questions
Reach out by phone, email, and live chat—whatever is most convenient for you
Access our experts Monday through Friday, from 8:00 AM – 7:00 PM Eastern time.
Contact Caregiver Action Network's Care Support Team by dialing 855-227-3640. Staffed by caregiving experts, the Help Desk helps you find the right information you need to help you navigate your complex caregiving challenges.
Caring.com is a leading senior care resource for family caregivers seeking information and support as they care for aging parents, spouses and other loved ones. We have been featured by AARP, The Administration for Community Living, The National Legal Resource Center, and Forbes, as well as referenced by many governmental agencies and organizations across the Internet.
We are on a quest to Build the Greatest Health Care Community the World Has Ever Seen. Learn how DaVita—which is Italian for "giving life"—is working to provide quality service to patients, partners and teammates.
To find a center call 1-800-424-6589.
DONATE LIFE CALIFORNIA is the state-authorized nonprofit organization responsible for managing the organ, eye, and tissue donor registry. Learn about Donate Life California’s mission to save lives by creating opportunities for all Californians to sign up on the official state organ, eye, and tissue donor registry.
Our vision is that one day, all Californians will embrace organ, eye, and tissue donation as their personal responsibility.
(866) 797-2366
info@donatelifecalifornia.org
ESRD Kidney Community Emergency Response Program
This program provides additional support to individuals with kidney disease during emergencies, which can be particularly stressful and exacerbate mental health issues.
Find easy-to-understand resources created by patients for patients on home dialysis, transplant, mental health, and more topics on the ESRD NCC website at www.esrdncc.org/patients.
HSAG provides quality improvement, data management, grievance investigation, technical assistance, and patient and professional education services for nearly 1,400 dialysis providers and over 90,000 dialysis patients across our Network service areas. Our goal is to efficiently and effectively increase the quality of care and quality of life for patients with kidney disease. Network 18 is one of 18 Networks under contract with CMS to work collaboratively with dialysis professionals, providers, and patients to improve patient care.
ESRD Network 18 of Southern California
700 N. Brand Blvd., Suite 405
Glendale, CA 91203
Office: 888-268-1539
Toll-free Number: 1-800-637-4767
At Fresenius Kidney Care, we’re passionately committed to helping people with chronic kidney disease (CKD) and end stage renal disease (ESRD) lead fuller, more active and vibrant lives.
You Can Thrive with Kidney Disease. We Can Help.
1-888-373-1470
As a healthcare advocate between your doctor and your own well-being, we strive to provide personalized and professional attention, as well as medication management protocols that inspire customers to seek out the medications and advice they need in order to get better. Trust our pharmacy to provide you with the care you deserve.
7910 Frost St Ste 130
San Diego, CA 92123
Ph: (858) 560-1911
Fax: (858) 560-9431
ITS UP TO US/ACCESS & CRISIS LINE
The It’s Up to Us campaign is designed to empower San Diegans to talk openly about mental illness, recognize symptoms, utilize local resources and seek help. By raising awareness and providing access to local resources, we aim to inspire wellness, reduce stigma and prevent suicide.
Crisis Line (888) 724-7240
KIDNEYSQUEST FOUNDATION
For over 11 years, KQF has been supporting kidney patients and families in Los Angeles County, including Antelope Valley, Lancaster, and Palmdale; Orange County, Ventura County, Kern County, Santa Barbara, and San Diego County, and surrounding areas of Southern California. KQF also provides case management in Harrisburg, Pennsylvania, plus outreach and support in Atlanta, Georgia.
Our Mission is to educate and provide people with knowledge about choices that are available, as well as options and alternatives for treatment and resources they might utilize.
(818) 521-6348
kqfoundation@gmail.com
Our mission is to educate the public about living kidney donation. On the 2nd Thursday of every month, Kidney Transplant Thursdays encourages those in the kidney transplant community, organizations, and individuals to use their social media outlets and traditional public relations to educate the public about living kidney donation. Check out their Facebook page for more info!
The national non-profits American Association of Kidney Patients (AAKP) and Medical Education Institute (MEI) partnered to develop KidneyWorks™. This patient advocacy program is designed to identify working-age people with Stage 3-5 CKD—those whose kidney function is less than 60%—and to promote job retention as a key means for these individuals to continue to pursue their life aspirations with health insurance, income and an enhanced quality of life.
LKDN is a nonprofit 501 (c) 3 org. We offer workshops and get-togethers to help you become successful at finding your living donor.
Harvey Mysel, Founder & President, established LKDN after recognizing the need for better resources while pursuing a successful living kidney transplant in 2007. Our purpose is to share knowledge and build the confidence to enable the life changing benefits of living donation.
1001 Green Bay Rd., Suite 178
Winnetka, IL 60093
(312)473-3772
http://www.lkdn.org/
The Centers for Medicare & Medicaid Services (CMS) is the federal agency that runs the Medicare Program. CMS is a branch of the Department Of Health And Human Services (Hhs). CMS also monitors Medicaid programs offered by each state. In 2017, Medicare covered over 58 million people. Total expenditures in 2017 were $705.9 billion. This money comes from the Medicare Trust Funds.
MEDICINE ASSISTANCE TOOL (MAT)
Be matched with assistance programs you may qualify for to help with prescription costs. "PhRMA’s Medicine Assistance Tool (MAT) is a search engine designed to help patients, caregivers, and health care providers learn more about the resources available through the various biopharmaceutical industry programs. MAT is not its own patient assistance program, but rather a search engine for many of the patient assistance resources that the biopharmaceutical industry offers.
Mental Health America (MHA)'s work is driven by its commitment to promoting mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services, and supports for those who need them; with recovery as the goal.
Phone (703) 684.7722
Toll-Free (800) 969.6642
National Alliance on Mental Illness
NAMI envisions a world where all people affected by mental illness live healthy, fulfilling lives supported by a community that cares.
NAMI provides advocacy, education, support, and public awareness so that all individuals and families affected by mental illness can build better lives.
NAMI HelpLine is available M-F, 10 am – 10 pm, ET.
Connect by phone at 800-950-6264 or text "Helpline" to 62640, or chat. In a crisis, call or text 988
NATIONAL INSTITUTE OF DIABETES, DIGESTIVE AND KIDNEY DISEASE
NIDDK research creates knowledge about and treatments for diseases that are among the most chronic, costly, and consequential for patients, their families, and the Nation.
healthinfo@niddk.nih.gov
1-800-860-8747
The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney disease, improving the health and well-being of individuals and families affected by kidney disease, and increasing the availability of kidneys for transplantation. Our Vision: To enhance the lives of everyone with, at risk of, or affected by kidney disease.
NKF Cares Patient Information Help Line
855.NKF.CARES (855.653.2273)
nkfcares@kidney.org
The mission of the NKR is to save and improve the lives of people facing kidney failure by increasing the quality, speed and number of living donor transplants in the world as well as protecting all living kidney donors.
National Kidney Registry
P.O. Box 460
Babylon, NY 11702-0460
Consistent throughout its 20-year history, the mission of PAF is to help one patient at a time by providing highly skilled case management service or financial aid to resolve problems related to their ability to access care and overcome financial hurdles during the most vulnerable times of illness.
(800) 532-5274
421 Butler Farm Road
Hampton, VA 23666
help@patientadvocate.org
SCIENTIFIC REGISTRY OF TRANSPLANT RECIPIENTS
Our mission is to provide advanced statistical and epidemiological analyses related to solid organ allocation and transplantation in support of the Department of Health and Human Services and its agents in their oversight of the national organ transplantation system.
701 Park Avenue
Suite S-4.100
Minneapolis, MN 55415
877.970.SRTR (7787)
Fax: 612.873.1644
SHARP PANCREAS AND KIDNEY TRANSPLANT PROGRAM
For 25 years, Sharp has led the way with our kidney and pancreas transplant program, with one of the highest survival rates in the country.
8010 Frost St Suite 100
San Diego, CA 92123
858.650.5000
Mon-Fri: 8:00 AM - 4:30 PM Pacific
SOUTHERN CAREGIVER RESOURCE CENTER
Established in 1987 as a non-profit 501(c)3, Southern Caregiver Resource Center (SCRC) is the leading provider of free caregiver support services for families caring for frail older adults and adults living with Alzheimer’s disease and related disorders in San Diego County. Serving over 100,000 families annually, SCRC offers a wide variety of support services that include education, care planning, case management, counseling, respite care, and support groups.
3675 Ruffin Rd, Suite #230
San Diego, CA 92123
858.268.4432 | 800.827.1008
scrc@caregivercenter.org
Our mission is to advance organ availability and transplantation by uniting and supporting our communities for the benefit of patients through education, technology, and policy development.
Patient information:
patientservices@unos.org
(888) 894-6361